The Scleroderma Foundation of California
EMPOWERING the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH
Follow Jim's 2022 journey
accept Our icy hands challenge*
Follow Jim's 2022 journey
Jim Hines will be walking almost 800 kilometers or nearly a million steps to raise funds and awareness of scleroderma.
Find My Support Group
accept Our icy hands challenge*
Follow Jim's 2022 journey
Locate your local community support group or reach one of our Support Group Leaders.
accept Our icy hands challenge*
accept Our icy hands challenge*
accept Our icy hands challenge*
This painful but SAFE CHALLENGE will allow you to experience the feeling our loved one's face on a daily basis.
(*Do not attempt if you are a scleroderma patient or currently have any open wounds on your hands).
Welcome to the scleroderma foundation of california
The Scleroderma Foundation of California has a proud history of serving the scleroderma community in the most impactful way for more than 34 years.
Our path forward begins with our decision to separate from the National Scleroderma Foundation and our new name as The Scleroderma Foundation of California.
Our new name accurately reflects the communities we currently serve, while allowing us to embark on future opportunities to expand our impact and reach more people in California and beyond.
our VISION
Is for all scleroderma patients to receive an accurate and timely diagnosis, and access to care and support for those who require it, until we find a cure to end scleroderma.
our MISSION STATEMENT
We EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH
Pillars of our mission
SUPPORT: Inspiring our community through support services and resources for patients including 15 local volunteer driven community peer led support groups, staff driven one-on-one professional guidance that allows them to thrive.
EDUCATION: For medical professionals to help them understand and properly diagnosis scleroderma early, and for patients to help them and cope and thrive while living with scleroderma.
RESEARCH: Help fund global research projects that will lead the way to finding a cure for scleroderma.
Our Partners and affiliations
As founding members of the original Scleroderma Foundation, we will continue our affiliation with the Scleroderma Foundation of Greater Chicago and the Scleroderma Foundation of Greater Washington DC.
AND we announce our new partnership and affiliation with the Friends of the World Scleroderma Foundation.
Working together, our organizations share a mission committed to improving the quality of life and fully supporting research. Through this partnership we will expand our EDUCATION mission initiatives to include outreach to the medical community providing the education needed to fully understand and properly diagnosis scleroderma. Additionally, we will help fund global RESEARCH projects.
Our affiliations will allow us to fulfill our mission and provide new opportunities for growth.
These changes end our affiliation as a Chapter of the National Scleroderma Foundation. However, we remain committed as partners in the fight against scleroderma.
FAQ
Where should I make my donation?
There are several options for making your donation including:
online at: www.myscleroderma.org
by mail: 8929 S. Sepulveda Blvd. Suite 412. Los Angeles, CA 90045 (checks should be made out to “the Scleroderma Foundation of California”
by phone: (424) 227-6475
What does my donation go towards?
Donations help support and grow our mission initiatives. This year, we will need to allocate some support to help us with the operational costs needed to restructure as a separate organization.
We are committed to increasing our funding for our patient centric programs and reaching out to expand the communities we serve. We also plan a new campaign focused on raising funds to support global research.
We also have a new campaign focused on raising funds to support global research.
Why should I donate to the Scleroderma Foundation of California?
We are grateful to our donors who have continued to support our mission for over 34 years, and we hope you will join us on our path forward.
We remain dedicated to serving our communities. Your ongoing support will allow us to expand our coverage to reach scleroderma communities, currently underserved.
Will the Foundation continue to do advocacy?
We will never stop advocating. Not until the day patients are diagnosed in a timely manner and doctors are educated about our disease.
We are working to make this transition as seamless as possible for our volunteers, staff, partners, and donors. We are grateful for the relationships we have built and encourage and ask for your feedback throughout this process.
THANK YOU FOR YOUR CONTINUED SUPPORT