The Scleroderma Foundation of California
(NOT AFFILIATED WITH THE NATIONAL SCLERODERMA FOUNDATION)
Welcome to the scleroderma foundation of california
The Scleroderma Foundation of California has a proud history of serving the scleroderma community since 1989.
While our name reflects the communities we currently serve, we look forward to expanding our impact to reach more underserved scleroderma communities in California and beyond.
our VISION
Is for all scleroderma patients to receive an accurate and timely diagnosis, and access to care and support for those who require it, until we find a cure to end scleroderma.
our MISSION STATEMENT
We EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH
Pillars of our mission
SUPPORT: Inspiring our community through support services and resources for patients including 22 local community volunteer driven support groups, one-on-one professional guidance that allows patients to thrive.
EDUCATION: For medical professionals to help them understand and properly diagnosis scleroderma early, and for patients to help them and cope and thrive while living with scleroderma.
RESEARCH: Support patient-oriented research in collaboration with national and international organizations working in scleroderma and related disease fields.
Our Partners and affiliations
As founding members of the original Scleroderma Foundation, we will continue our affiliation with the Scleroderma Foundation of Greater Chicago and the Scleroderma Foundation of Greater Washington DC.
We have also partnered with the Friends of the World Scleroderma Foundation.
Working together, our organizations share a mission committed to improving the quality of life and fully supporting research. Through this partnership we will expand our EDUCATION mission initiatives to include outreach to the medical community providing the education needed to fully understand and properly diagnosis scleroderma. Additionally, we will help fund global RESEARCH projects.
These partnerships will allow us to fully fulfill our mission and provide new opportunities for growth. While our affiliation as a Chapter of the National Scleroderma Foundation has ended, we remain committed as partners in the fight against scleroderma.
FAQ
Where should I make my donation?
There are several options for making your donation including:
online at: www.myscleroderma.org
by mail: 8929 S. Sepulveda Blvd. Suite 401. Los Angeles, CA 90045
(Please make all checks payable to “the Scleroderma Foundation of California”
by phone: (424) 227-6475
What does my donation go towards?
Donations help support and grow our mission initiatives. This year, we will need to allocate some support to help us with the operational costs needed to restructure as a separate organization.
We are committed to increasing our funding for our patient centric programs and reaching out to expand the communities we serve. We also plan a new campaign focused on raising funds to support global research.
We also have a new campaign focused on raising funds to support global research.
Why should I donate to the Scleroderma Foundation of California?
We are grateful to our donors who have continued to support our mission for over 34 years, and we hope you will join us on our path forward.
We remain dedicated to serving our communities. Your ongoing support will allow us to expand our coverage to reach scleroderma communities, currently underserved.
Will the Foundation continue to do advocacy?
We will never stop advocating. Not until the day patients are diagnosed in a timely manner and doctors are educated about our disease.
We are grateful for the relationships we have built and encourage and ask for your feedback throughout this process.
THANK YOU FOR YOUR CONTINUED SUPPORT
