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Our volunteer-led support groups enable individuals with scleroderma to meet and exchange information with others who face similar challenges. All Support Group Leaders are trained by our partners at SPIN (Scleroderma Patient-centered Network). Support groups often feature speakers specializing in scleroderma or related topics.
PLEASE NOTE: Some support groups are only meeting virtually. Please contact the Support Group Leader for updates.
We currently have Support Groups located in the following communities:
California: Antelope Valley/Lancaster, Bakersfield/Kern County, Camarillo/Ventura County, Central Coast, Fresno, Imperial County/El Centro, Inland Empire/San Bernardino, Los Angeles/South Bay, Los Angeles County/San Gabriel Valley, Monterey Bay, Orange County, Palm Springs/Rancho Mirage, Palo Alto, Sacramento, San Diego/Encinitas, San Diego/Mission Valley, San Fernando Valley/Sherman Oaks, Santa Barbara, Santa Rosa.
Hawaii: Honolulu and Maui
Nevada: Las Vegas
Arizona: Prescott
Other:
- Young Adults Living with Scleroderma (Ages 17 - 30's)
- Parents of Children and Teens Living with Scleroderma.
- Spanish Speaking Scleroderma Support Group
SUPPORT GROUP CONTACTS AND MEETING SCHEDULE
Young Adult Support Group (Ages 17 - 30's)
Meeting in-person and virtually, alternating every other month. (Contact leaders for zoom link)
Location: Office of the Scleroderma Foundation of California
8929 S Sepulveda #401
Los Angeles, CA, 90045
Support Group Co-Leader: Alejandra Serrano
Phone: 213-245-7439
Email: sclerowarrior18@gmail.com
Support Group Co-Leader: Brittany Rudy-Morris
Phone: 909-263-8662
Email: YASGBRITTANY@gmail.com
2024 IN PERSON Meeting Dates: Saturdays 11:00 AM - 1:00 PM February 10,April 13, June 8, August 31 End of Summer Party, October 12, December 14
2024 VIRTUAL Meetings Dates: Mondays 7:30 PM - 9:00 PM January 8, March 11, May 13, July 8, September 9, November 11
Parents of Kids and Teens with Scleroderma (Ages 0-19)
Navigating the journey of scleroderma with your child can be uniquely challenging. We understand the need for a supportive community and the necessity of essential information to guide you through the daunting world of scleroderma. That’s why we’re excited to introduce our new support group tailored for parents of kids and teens with scleroderma. Whether your child is dealing with localized scleroderma or systemic sclerosis (SSc), connecting with other parents who share the same journey is profoundly beneficial for both you and your child. All caregivers are welcome.
Virtual meetings twice a month 1st Thursday 8 PM EST/5 PM PST and 3rd Saturday 12 noon EST/9 AM PST.
Meeting Dates:
Thursdays 2024: 1/4/2024, 2/1/2024, 3/7/2024, 4/11/2023 (date changed from 4/4), 5/2/2024, 6/6/2024, 7/11/2024, 8/8/2024 at 11am pst (Date and Time Change), 9/5/2024, 10/3/2024, 11/7/2024, 12/5/2024
Saturdays 2024: 1/20/2024, 2/17/2024, 3/16/2024, 4/20/2024, 5/18/2024, 6/15/2024, 7/20/2024, 8/17/2024, 9/21/2024, 10/19/2024, 11/16/2024, 12/21/2024
Location: Zoom (See 'Meeting Calendar' under 'Support Group Resources' for zoom link to register)
Support Group Co-Leader: Pamela Pour
Phone: 248-885-7094
Email: scleromom9@gmail.com
Support Group Co-Leader: Isabel Reyes
Phone: 626-703-0619
Email: 4me4us.curescleroderma@gmail.com
Spanish Speaking Scleroderma Support Group
¡Buenas noticias! Estamos ofreciendo un grupo de apoyo para todas nuestras familias que hablan español en asociación con la Fundación de Esclerodermia del Área Metropolitana de Chicago. Este grupo está hecho para todos los guerreros de la esclerodermia de habla hispana, sin importar dónde se encuentren en su camino. ¡Juntos somos más fuertes! Únase a nosotros desde casa a través de zoom.
El grupo se reúne una vez al mes el segundo jueves a las: 5 p.m. PST/7 p.m. CST/8 p.m. EST: 12 de abril, 10 de mayo, 14 de junio, 12 de julio, 8 de agosto, 12 de septiembre, 10 de octubre, 14 de noviembre, 12 de diciembre
Por favor, regístrese con anticipación en:
https://us06web.zoom.us/meeting/register/tZUrf-CprTMrHNw-_XoEX06T9K4vVHqfA0PN
Después de registrarse, recibirá un correo electrónico de confirmación con información sobre cómo unirse a la reunión.
Support Group Leader/Líder del Grupo de Apoyo: Alejandra Serrano
Phone/Teléfono: 213-245-7439
Email/Correo electrónico: sclerowarrior18@gmail.com
Northern Arizona Support Group Meeting in Prescott
Location: Prescott Public Library in the Elsea Conference Room
215 E. Goodwin Street, Prescott, AZ, 86303.
Patients and Caregivers Welcome!
Topic This Month: Meet and Greet
This is our second meeting in Arizona. After introductions, we will discuss the activities and events offered by the Scleroderma Foundation of California and see what activities, programs and meetings we can do in Arizona.
Support Group Co-Leader: Roberta Hines
Phone: 562-745-8075
Email: hines.roberta50@gmail.com
Support Group Co-Leader: Bonnie Copeland
Phone: 714-606- 6059
Email: bonmail@pacbell.net
2024 Meeting Dates: Saturday, July 13th from 11:30 AM to 2 PM
(Please call Roberta to RSVP your attendance)
Antelope Valley/Lancaster
(All Meetings are Virtual Until Further Notice. LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Support Group Leader: Michelle Schoelz
Email: avsgmichelle@gmail.com
Phone: 626-230-0524
Support Group Leader: Noelle Kei
Email: ellekei777@gmail.com
Phone: 562-833-9172
2024 Meeting Dates: Saturdays from 10 AM to 11:30 AM: September 28, November 30
Bakersfield/Kern County Support Group
Location: The Office of Timothy M. Osborn
2200 Truxtun Ave.
Bakersfield, CA 93301
Support Group Leader: Stephen Elrod
Phone: 661-201-1759
Email: stephenelrod168@yahoo.com
2024 Meetings:
The Bay Area Scleroderma Support Group (OUR COMMUNITY PARTNERS)
This is an independent group of scleroderma patients and caregivers serving the San Francisco Bay area and they are currently meeting virtually via ZOOM monthly, on the 3rd Saturday, from 1 PM-3 PM (PST).
Meeting Location (once meetings in person return): Kaiser Hospital
West Niles Building
Conference Room G (110) First Floor
39400 Paseo Padre Parkway
Fremont, CA 94538
Support Group Leaders: Pat and Mary Lou
Phone: 408-926-4314/510-471-5831
Email: SFBayAreaSclero@gmail.com
2024 Meetings: Saturday, January 20, February 17, March 16, April 20, May 18, June 15, July 20, August 17, September 21, October 19. (No meetings November and December)
PLEASE CLICK HERE to join their email list for updates and full meeting details.
or visit https://www.bayareasclero.org/
Camarillo/Ventura County Support Group
Location: Pleasant Valley Recreation & Park District
1605 Burnley St, Camarillo, CA 93010.
Support Group Co Leader: Melissa Knolls
Phone: 805-231-9573
Email: Melissa.K.VenturaCounty@gmail.com
Support Group Co- Leader: Maura Sylber
Phone: 805-368-0843
Email: msylber@verizon.net
2024 Meeting Dates: Saturdays from 10:30 AM - 12:30 PM: January 13, March 9, May 11, July 13, September 14, November 9
Central Coast Support Group
(Servicing Northern Santa Barbara and San Luis Obispo County)
Meeting Location: Saint John's Lutheran Church
959 Valley Rd.
Arroyo Grande, CA 93420
Support Group Co-Leader: Pat Muran (Habla Español)
Phone: 805-459-2362
Email: pat.ccssg@gmail.com
Support Group Co-Leader: Daisy Perez
Phone: 805-363-5257
Email: brighterthansclero17@gmail.com
2024 Meeting Dates: Saturdays from 11:00 AM to 1:00 PM January 20, March 16, May 18, July 20, September 21, November 16
Fresno Support Group
(All Meetings are Virtual Until Further Notice. LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Support Group Leader: Jennifer Wood
Email:jen4fresnoSGL@gmail.com
Phone: 805-878-6261
2024 Meeting Dates: Wednesdays from 6:30 PM to 7:30 PM: January 24, February 28, March 27, April 24, May 22, June 26, July 24, August 28, September25, October 23, November 27, December18
Honolulu and Maui Support Group
(All Meetings are Virtual Until Further Notice. LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Support Group Leader: Barbara Butorovich (Honolulu)
Email: sclerodermahawaii@gmail.com
Phone: 808-260-6380
Support Group Leader: Kimberly Lynn (Maui)
Phone: 808-344-5007
Email: backtonature.kim@gmail.com
2024 Meeting Dates: Saturdays from 10 AM to 11:30 AM, January 27, March 23, May 25, July 27, September 28, November 30
Imperial County/El Centro Support Group
(All Meetings are Virtual Until Further Notice. LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Contact leader for next meeting location
Support Group Leader: Debi Gray
Phone: 760-554-4942
Email: ivsclerogroup2017@yahoo.com
2024 Meeting Dates: Saturdays from 10AM to 11:30 AM, January 27, March 23, May 25, July 27, September 28, November 30
Inland Empire/San Bernardino Support Group
Meeting Location (Cindy's home - call leader for location)
Support Group Co-Leader: Mercedes Howard
Phone: 909-994-7495
Email: mercedes.howard@ymail.com
Support Group Co-Leader: Cindy Hoverson
Phone: 909-896-9848
Email: cindyscupoftea@yahoo.com
2024 Meeting Dates: Saturdays from 10:00 AM to 12:00 PM February 3, April 6, May 4, June 29 (support group meeting at Cindy's house to carpool to A Million Steps For Scleroderma LA/OC), August 3, October 5, December 1
Las Vegas Support Group
Meeting Location: Rainbow Library
3150 N. Buffalo Dr.
Las Vegas, NV 89128
Support Group Co-Leader: Nancy Garza
Phone: 562-307-5690
Email: LVSGLnancy@gmail.com
Support Group Co-Leader: Delores Leonard
Email: lvsgdelores@gmail.com
Phone: 702-321-9252
2024 Meeting Dates: Saturday 1:00pm 3:00pm May 18, June 15, July 20, August 17, September 14, October 19
Los Angeles/South Bay Support Group
Meeting Location: Office of the Scleroderma Foundation of California
8929 S Sepulveda Blvd # 401
Los Angeles, CA 90045
Support Group Leader: Tina Burger
Phone: 310-699-7290
Email: tburger@myscleroderma.org
2024 Meeting Dates: Saturdays from 10 AM to 12 noon: January 20 (DATE CHANGE), March 9, May 11, July 13, September 14, November 9
Los Angeles County/San Gabriel Valley Support Group
Meeting Location: The Alhambra
1000 South Fremont Ave.
Alhambra, CA, 91803
(MAKE SURE YOU COME TO SOUTH FREMONT)
There is no charge for parking. Enter parking lot from Fremont Street and park near the Green Awning that says "THE ALHAMBRA"
Follow "Scleroderma Meeting" signs for meeting room.
Support Group Co-Leader: Penni Lavoot
Phone: 714-313-8539
Email: plavoot@gmail.com
Support Group Co-Leader: Catherine Baca
Phone: 213-590-2273
Email: MyLivingSpecialist@gmail.com
2024 Meeting Dates:
CANCELLED- Monday September 9th (GATHERING AT BOLSA CHICA BEACH)
Saturday, September 21 - In-Person Meeting at The Alhambra, 11 AM - 1:00 PM
Monterey Bay Support Group
(LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Support Group Co-Leader: Annette Rahn
Phone: 650-575-8214
Support Group Co-Leader: Cheri O'Neil
Phone: 831-334-6300
Email: mbsclero@gmail.com
Virtual Meetings on zoom second Monday of each month from 7 PM to 8:30 PM:
Monday, June 10th, July 9th, August 12th, September 9th, October 14th, November 11th.
Orange County Scleroderma Support Group
Meeting Location: Chateau Blanc Clubhouse
18650 Brookhurst Street
Fountain Valley, CA 92708
Support Group Co-Leader: Bonnie Copeland
Phone: 714-606- 6059
Email: bonmail@pacbell.net
Support Group Co-Leader: Roberta Hines
Phone: 562-745-8075
Email: hines.roberta50@gmail.com
2024 Meeting Dates: Saturdays from 11:30 AM to 2:00 PM January 20, April 13, July 13, September 21, October 12, December 7.
Palm Springs/Rancho Mirage
(Virtual and In-Person meetings. Call support group leader for address for in person meetings and zoom link for virtual)
Support Group Co-Leader: Christine Haddad
Phone: 909-754-5934
Email: christinesfie@gmail.com
In-Person: Sunday July 14th, September 8th, November 10th, DEC TBD for end of year party! Meetings located at Christine's home. (Please contact support group leader for address for meeting)
Palo Alto Support Group
(Meeting both in person and virtually. Call support group leader for zoom link)
Support Group Leader: Rachel Ho
Phone:415-680-4389
Email: rachelhosf@gmail.com
2024 Meeting Dates:
Virtual: Sundays from 10:30 AM - 12:30 PM January 14, March 10
In-Person: Saturdays from 11:00 AM - 1:00 PM February 17, April 13, June 8
In-Person Meeting Location: 2000 North Shoreline Blvd. Mountain View, CA 94043
Sacramento Support Group
(All Meetings are Virtual Until Further Notice. LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Support Group Co-Leader: Sa'Ronda Ary
Phone: 707-310-1299
Email: HeartforSclero@gmail.com
2024 Meeting Dates: Second Sundays from 5 PM to 6:30 PM: April 14, May 19, June 9, July 14, August 11, September 8, October 13, November 10, December 8
San Diego/Encinitas Support Group
Location: Encinitas Community Center
1140 Oakcrest Park Drive
Encinitas, CA 92024
Support Group Leader: Kelly Clemeshaw
Phone: 760-855-3449
Email: kclemeshaw@gmail.com
2024 Meeting Dates: Saturdays from 10:00 AM to 12 noon February 3, April 6, June 1, August 3, October 5.
San Diego/Mission Valley Support Group
Location: Mission Valley Library
2123 Fenton Parkway
San Diego, CA 92108
Support Group Leader: Susan Okuno
Phone: 619-246-9393
Email: sokuno1@yahoo.com
2024 Meeting Dates: Saturdays from 10 AM to 12 noon: January 6, March 2, May 4, (CANCELLED-July 6), September 7, November2
San Fernando Valley Support Group
Sunday, 11 a.m. to 1 p.m., every other Month (2nd Sunday)
Location: Sherman Oaks Hospital, Doctors Conference Room
4929 Van Nuys Blvd.
Sherman Oaks, CA 91403
Support Group Co-Leader: Kelly Ryan
Phone: 818-974-2428
Email: Kelly@kellycryan.com
Support Group Co-Leader: Marissa Villa
Phone: 818-903-4575
Email: marissavilla818@gmail.com
2024 Meeting Dates: Sunday 11:00 AM - 1:00 PM: January 14, March 10, May 12, (Mother's Day) July 14, September 8, November 10.
Santa Barbara Support Group
Meeting Location: Beneflex Insurance Office (corner of Anapamu and Chapala)
101 W. Anapamu St,
Santa Barbara, CA 93101
Support Group Leader: Cindy Cattaneo
Phone: (805) 895-7384
Email: ccattaneo123@gmail.com
2024 Meetings:
Santa Rosa Support Group
(LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
Support Group Co-Leader: Mary Lamb
Phone: 415-246-4501
Email: ncalsclero@gmail.com
Support Group Co-Leader: Melisa Brown
Phone: 707-246-3520
Email: livingitupin2030@yahoo.com
2024 Meeting Dates: Virtual: Third Wednesdays from 7PM to 8:30 PM on zoom: June 19th, July 17th, August 21st, September 18th, October 16th.
VIRTUAL PEER MEETINGS FOR ALL
Come One-Come All!!! Families from our neighboring support groups will be joining together to share updates, get advice and give support) (LINKS TO REGISTER FOR ZOOM MEETINGS ARE LISTED UNDER CALENDAR OF EVENTS)
2024 Meeting Dates: Saturdays from 10 AM to 11:30 AM, January 27, March 30, May 25, July 27, September 28, November 30
For further information about any of our support groups, or information on how to start a Support Group in your community please contact:
Tina Burger, Patient Services Director
Phone: 310-699-7290
Email: tburger@myscleroderma.org
San Diego Support Group
Young Adult Support Group
Palo Alto Support Group
San Fernando Support Group
Scleroderma Foundation of California
8929 S. Sepulveda Blvd. Suite 401