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Elaine Furst, RN, BSA, MA
Scleroderma Foundation Volunteer, Educator
Elaine Furst studied Roman and French History at Rutgers University in Newark. She holds a Masters of Nursing Administration and Psychiatry from the University of Iowa and a Liberal Arts Degree in the Comparative History of Ideas from Johns Hopkins University.
As a master's prepared registered nurse with over 30 years of experience in patient education, Elaine has dedicated her career to teaching student nurses and patients, specializing in psychosocial nursing. Her work is particularly focused on helping individuals with chronic illness, such as scleroderma, navigate their health challenges.
Since 1994, Elaine has been a dedicated volunteer for the Scleroderma Foundation, where she has served as a support group leader, Chapter President, and Editor of the Sclero-Sun. In addition to educating scleroderma patients on how to live well with chronic disease, she also works in movies and television as a background artist, often portraying a nurse in productions like Agents of S.H.I.E.L.D. and Sons of Anarchy, among others.
In this corner, you will find articles that will help, inspire, and inform you about living with a chronic illness, whether you are a scleroderma warrior or not. These pieces are designed for patient education, so feel free to read and share them, and we hope they will assist you in any way.
Short and sweet. In the realm of chronic illness, understanding the nuances of conditions like scleroderma is crucial for effective patient education. For more insights on medical myths we often believe, check out this article: https://urldefense.proofpoint.com/v2/url?u=https-3A__www.dictionaryscoop.com_article_11-2DMedical-2Dmyths-2Dwe-2Dkeep-2Dbelieving-2Dbut-2Dreally-2Dshouldnt&d=DwIFaQ&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=3A6AULDhR87WKmOjV4wkHEkOzXw-rAoleZfwJ4xn83E&m=5zYiR3BaNgMlFOkqZbGzI0fC9r-gWxOCrDnOxvDzDYOcByd6cwqHxVyi-3SDtQKA&s=StXVJkFI2QpTomJHvTi5QJY5IT4HF6Bj5lhuUjGKsVg&e=. Have a great day. You deserve it! 💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Hello all and welcome to Spring/Summer! Sometimes it’s hard to tell the differences between these two seasons, right? I hope you can enjoy the sunshine and the outdoors here in beautiful SoCal.
While I was sitting outside (having plastered 30 SPF sunscreen all over), I found an interesting article in the Washington Post about foods that are being studied as anti-inflammatories, which could be particularly beneficial for those dealing with chronic illness. I thought you might like to read it and share it with your healthcare provider the next time you see them. As always, be sure to talk to your doctor about it; we at the chapter are not the experts on the subject, but the doctors in the article are. This could be a valuable piece of patient education, especially for those affected by scleroderma.
Send me any questions and/or comments you might have about this or other subjects you want to read about. All the best for a great season.
Elaine Furst
Have a great day. You deserve it! 💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
The video for this week focuses on turmeric, a spice widely used in Middle Eastern cuisines. This spice has been praised by many alternative medicine practitioners for its anti-inflammatory properties. However, at our core, we prioritize patient education and aim to examine the actual studies to ensure that turmeric is truly worth your time and money without causing harm. Here is the information you might find useful regarding turmeric and its potential benefits for chronic illness.
Turmeric alone is not very well absorbed into your system. Curcumin, the active ingredient in turmeric, can be purchased separately, and uncontrolled studies suggest it may help reduce inflammation associated with bowel diseases, rheumatoid arthritis, and psoriatic arthritis. You might have heard that turmeric is effective for scleroderma, but unfortunately, no human studies have confirmed its efficacy in treating this chronic illness. However, in test tubes and animal studies, curcumin does appear to impact inflammation related to scleroderma. Sadly, there is no proof of its effectiveness in human cases. There are specialized formulations of curcumin that are better absorbed, so it’s worth asking your pharmacist about them.
Are there side effects, you may ask? After all, you never get something for nothing. While side effects are rare, they can include nausea, diarrhea, liver injury, yellow stools, gastrointestinal bleeding, headaches, and rashes.
If you decide to take curcumin, remember that it is poorly absorbed. Combining it with black pepper, fatty foods, coconut oil, or specialized formulations like nano-particles can enhance absorption. Your pharmacist might be able to provide these options.
I have included two reasonably good articles about the subject for your reference. Please consult your rheumatologist if you have any questions.
https://pmc.ncbi.nlm.nih.gov/articles/PMC2637808/
Have a great day. You deserve it! 💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Hello Everyone: You have “a lot going on” right? How to keep your brain sane when anxious thoughts get in the way, especially for those dealing with chronic illness like scleroderma. It's important to seek out patient education resources that can help manage your mental well-being.
Have a great day. You deserve it! 💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Elaine Furst
Hello Everyone: Now that the winter holidays are over and we are into the Winter, welcome to our Winter ScleroSun. We are experiencing warm weather, a little rain in some areas, and lots of sunshine. We are also seeing national and international news making large headlines every day across TV, social media, newspapers, billboards, and anywhere our eyes and ears can access them. For those of us living with chronic illness, particularly scleroderma, paying attention to all that alarming, sad, and frightening information can be quite overwhelming, and I mean that literally. Autoimmune diseases can flare up with too much stress, and many of us find the atmosphere of danger and sadness extremely stressful. If you would like some patient education on how to handle the anxieties of the current atmosphere, here are some helpful articles to assist you. But first, get cozy, put your body in a comfortable position, grab some chicken soup or tea, or whatever warms you up, and relax.
All the best to you from me,
Elaine Furst
https://ufhealth.org/stories/2016/living-in-a-chaotic-world-how-to-keep-anxiety-at-bay
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Elaine Furst
A new study highlights the brain’s role in immune health, underscoring the importance of patient education in managing chronic illness. It truly is a question of mind over matter. Read more in The Economist: https://urldefense.proofpoint.com/v2/url?u=https-3A__apple.news_AagUthistQu6K-5FxX99zrMYQ&d=DwIFaQ&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=3A6AULDhR87WKmOjV4wkHEkOzXw-rAoleZfwJ4xn83E&m=-CILOZ-9q-y0bV96wp4ECVw_XrEEIgLxFWtLCbxAvpi4DpJ3jX5LtpxFwBAkJdPH&s=UB2dsxYlNrUPhOPw7cNsBBd4i4esgqtCyA2jLvFvxbQ&e= Happy end of January! Let’s all be grateful that we live in a state that keeps its snow in the mountains where it belongs. Meanwhile, remember the concept of placebo? Here is even more evidence that the mind is powerful and affects so many physical functions, especially for those dealing with chronic illnesses like scleroderma. Enjoy. Warm hugs, Elaine Furst
Here's an article on MDLinx that I thought you might find interesting, especially if you're involved in patient education related to chronic illness such as scleroderma:
These simple habits could make your brain 8 years younger, study finds:
Warm Hugs,
Elaine Furst, Editor
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Did you know that scleroderma patients, who often face the challenges of chronic illness, may be taking up to 40 or more medications per day, sometimes twice a day? Add supplements to that amount and you are swallowing a lot of chemicals and other substances! This informative article from the NY Times discusses supplements and what doctors think of them. It is not argumentative but provides valuable patient education so you can understand the logic behind most physicians’ opinions. It contains a wealth of information that you can trust. One very important caveat: all supplements, herbs, tinctures, oils, etc., have side effects ranging from mild or non-existent to dangerous, especially when combined with your regular medications. Even pure grapefruit juice can affect the strength of all the medications you’re taking!
Enjoy the article. There will be no exam this time : - )
Of course, you can also look up the supplements you’re taking on the USP (the US Pharmacopeia) website: https://qualitymatters.usp.org/categories/dietary-supplements. It has lots of information that you can trust. Remember the important caveat: all supplements, herbs, tinctures, oils, etc., have side effects ranging from mild or non-existent to dangerous, often when combined with your regular medications. Even pure grapefruit juice can affect the strength of all the medications you’re taking!
Enjoy the article. There will be no exam this time : - )
Warm hugs,
Elaine Furst
Editor
PS: If you have any suggestions for this educational Nook, let me know via email. Thank you.
Do you have the right rheumatologist for your chronic illness? How do you know? The right physician is crucial for your treatment, improvement, and overall well-being, especially when managing conditions like scleroderma.
What should you do if your current rheumatologist is not a good fit for you? Our friends at the Creaky Joints patient organization offer valuable insights on this topic. See below for more information on patient education and resources to help you navigate your healthcare journey.
Please send me an email if you have topic suggestions or critiques you want to share.
Thanks to the Office Team for their help with the ScleroSun and this column.
Warm Hugs,
Elaine Furst, Editor
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
This is an upbeat story that highlights how unintended consequences can occur in happy circumstances, not just negative ones. It's important to recognize that your experience with a chronic illness, such as scleroderma, can lead to positive outcomes that benefit others. Through patient education, we can better understand how our challenges can foster innovations and conveniences in everyday life.
Have a great day. You deserve it! 💐🌼🫶🏼🧚🏽♂️🪷🍄🍀









Scleroderma Foundation of California
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