Signed in as:
filler@godaddy.com
Signed in as:
filler@godaddy.com

Elaine Furst, RN, BSA, MA
Scleroderma Foundation Volunteer, Educator
Elaine Furst studied Roman and French History at Rutgers University in Newark. She has a Masters of Nursing Admin & Psychiatric from the University of Iowa and a Liberal Arts Degree in Comparative History of Ideas from Johns Hopkins University.
Elaine is a master's prepared registered nurse with 30+ years of experience teaching student nurses and patients. Her specialty was psychosocial nursing.
Elaine has volunteered for the Scleroderma Foundation since 1994, serving as support group leader and Chapter President and Editor of the Sclero-Sun. Besides teaching Scleroderma patients how to live well with chronic disease, she also works in movies and television as a background artist, sometimes playing a nurse in such productions as Agents of S.H.I.E.L.D. and Sons of Anarchy, among others.
In this corner you will find articles that will help you, inspire you, and inform you, whether you are a scleroderma warrior or not. Feel free to read and share and we hope they will help you in any way.
Hello all and Welcome to Spring/Summer. Sometimes it’s hard to tell the differences between these two seasons, right? I hope you can enjoy the sunshine and the outdoors here in beautiful SoCal.
While I was sitting outside (having plastered 30 SPF sunscreen all over) I found an interesting article in the Washington Post about foods that are being studied as anti-inflammatories and thought you might like to read it and show it to your healthcare person the next time you see them. As always, be sure to talk to your doctor about it; we at the chapter are not the experts on the subject, but the doctors in the article are. Send me any questions and/or comments you might have about this or other subjects you want to read about.
All the best for a great season.
Elaine Furst
efurst@prodigy.net
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
The video for this week is about Tumeric, a spice that is used extensively in cuisines from the Middle East. It has been lauded as an anti-inflammatory by many “alternative medicine” practitioners. But you know us: we like to find out what the actual appropriate studies say so we can be sure the stuff actually is worth your time and money and does no harm. Here is the information you might find useful.
Tumeric by itself is not very well absorbed into your system. Curcumin is the active ingredient in tumeric. Curcumin can be bought by itself, and in uncontrolled studies, appears to help reduce inflammation in bowel diseases, Rheumatoid Arthritis, and psoriatic arthritis. You may have heard that tumeric is effective on scleroderma, but no studies in humans showed an effect on scleroderma. In the test tube and in animals it affects inflammation which is active in scleroderma. There is not proof of any effect in scleroderma in humans, sorry to say. There are special formulations of curcumin that are better absorbed. Ask your pharmacist about them.
Are there side effects, you may ask? After all, you never get something for nothing. There are rarely side effects, but those that occur are: nausea, diarrhea, liver injury, yellow stools, GI bleeding, headaches and rashes. Again, they are rare.
If you take curcumin, remember that it is poorly absorbed. It will be better absorbed with black pepper, fatty foods or coconut oil or special formulations like (eg.) nano-particles. Your pharmacist might be able to get those for you.
I have included two reasonably good articles about the subject. Please talk to your rheumatologist if you have questions.
https://pmc.ncbi.nlm.nih.gov/articles/PMC2637808/
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Hello Everyone: You have “a lot going on” right? How to keep your brain sane when anxious thoughts get in the way.
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Elaine Furst
Hello Everyone: Now that the winter holidays are over and we are into the Winter, welcome to our Winter ScleroSun. We are experiencing warm weather, a little rain in some areas and lots of sunshine. We are also experiencing the national and international news in large headlines everyday all over TV, social media, newspapers, billboards, and anywhere eyes and ears can access them. For those of us with chronic illnesses, paying attention to all that information, most of it alarming/sad/frightening, can be sickening, and I mean that literally. Autoimmune disease can flare with too much stress, and most of us find the atmosphere of danger and sadness quite stressful. If you would like some information about how to handle the anxieties of the current atmosphere, here are some good articles to help you out. But first, get cozy, put your body in a comfortable position, grab some chicken soup or tea or whatever warms you up and relax.
All the best to you from me,
Elaine Furst
https://ufhealth.org/stories/2016/living-in-a-chaotic-world-how-to-keep-anxiety-at-bay
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Elaine Furst
A new study highlights the brain’s role in immune health It truly is a question of mind over matter Read in The Economist:
Happy end of January and let’s all be grateful that we live in a state the keeps its snow in the mountains where it belongs! Meanwhile, remember the concept of placebo? Here is even more evidence that the mind is powerful and affects so many physical functions.
Enjoy.
Warm hugs,
Elaine Furst
Here's an article on MDLinx that I thought you might be interested in:
These simple habits could make your brain 8 years younger, study finds:
Warm Hugs,
Elaine Furst, Editor
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
Did you know that scleroderma patients may be taking up to 40 or more medications per day, sometimes twice a day? Add supplements to that amount and you are swallowing a lot of chemicals and other substances! This is an informative article from the NY Times about supplements and what doctors think of them. It is not argumentative but informative so you can see the logic behind most physicians’ opinions. It has lots of information that you can trust. One very important caveat: all supplements, herbs, tinctures, oils, etc. have side effects ranging from mild or non-existent to dangerous, often when combined with your regular medications. Even pure grapefruit juice can affect the strength of all the medications you’re taking!
Enjoy the article. There will be no exam this time : - )
Of course, you can also look up the supplements you’re taking on the USP (the US Pharmacopeia) website: https://qualitymatters.usp.org/categories/dietary-supplements. It has lots of information that you can trust. One very important caveat: all supplements, herbs, tinctures, oils, etc. have side effects ranging from mild or non-existent to dangerous, often when combined with your regular medications. Even pure grapefruit juice can affect the strength of all the medications you’re taking!
Enjoy the article. There will be no exam this time : - )
Warm hugs,
Elaine Furst
Editor
PS: If you have any suggestions for this educational Nook, let me know on my email. Thank you.
Do you have the right rheumatologist? How do you know? The right physician has been shown to be important to your treatment, improvement and well being.
What do you do if he or she is not right for you? Well, our friends at the Creaky Joints patient organization have some answers. See below.
Please send me an email if you have topic suggestions or critiques you want to share.
Thanks to the Office Team for their help with the ScleroSun and this column.
Warm Hugs,
Elaine Furst, Editor
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀
This is an upbeat story that shows how unintended consequences happen in happy circumstances, not only negative ones. And you can now feel good that your “disability” has, in some ways, helped others.
Have a great day. You deserve it!
💐🌼🫶🏼🧚🏽♂️🪷🍄🍀









Scleroderma Foundation of California
8929 S. Sepulveda Blvd. Suite 401